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Old 11th July 2019, 08:58   #261 (permalink)
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Re: My Bolshie Husband

I shaved off a patient's moustache. Was I wrong?

https://allnurses.com/i-shaved-patie...he-was-t91625/
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Old 11th July 2019, 11:13   #262 (permalink)
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Re: My Bolshie Husband

Well, it was a good job it was me doing the shaving! The hair cutter worked reasonably well, but the hairs are so wiry, not like hair on the head. I discovered after most of the beard was gone that his skin has got very dry under the beard cover. Dave was quite pleased though, as he reckons what is left will go easily with a wet shave, as he has shaved when it was longer. It must have worked, because the nurses are now joking with him asking if he is a new patient! I have to say that although I quite liked the beard, he does look better without it.

As the physios had told him he could use the en suite toilet, I went for a male nurse and zimmer frame, both of which I found. He was helped into the toilet. He was so pleased to be sitting on a proper toilet again! Funny isn't it? The smallest things give pleasure. After he was helped by the nurse back into bed. He said he feels a bit more human now. Dave did have a bit of trouble in that he got himself up okay to the zimmer, but had obviously used all the accumulated strength in his arms, because when it came to getting off the toilet, he needed help to get up.

He is still eating quite well. In fact, he asked me if I could take him in some soft fruit today. It seems he was given some sort of medication in liquid form, and it has sort of burned his mouth and lips. They have given him a tube of gel which is to replace saliva in the mouth. He says it does help a bit, but much as he likes them, he couldn't eat an orange.

So, I have packed a bag with various fruits for him to choose from. Banana, I know he will eat that. Red and white grapes, he mentioned them specifically. Some apricots and some strawberries. I can bring home what he feels he won't eat. He is a great lover of pork and pickle pies too. I found a small box of these in M&S marked up "Dinky pork and pickle pies". Only one mouthful, but it depends if the gel has worked, as the pies are obviously not soft.

Not only did the doctor not appear after I left, he says no doctor at all came to see him yesterday. Maybe they are waiting until he has shaken the infection. Still has to have the door shut and staff in all their protective gear, so we are not out of the woods yet.

After he had used the toilet, a girl came in from the Rehab team. Dave told her that he couldn't get out of bed again, he was worn out with the jaunt to and from the toilet. She said she would leave it until this afternoon. It is likely that he will only be able to walk round the room, but every little must help.

Nobody is obsessing about his sugar levels, so I hope they have realised that it is best left alone. Only problem is that if Dave was at home and did a test, and say got a result of 14, then he would take a small amount of insulin. He can't do that in there because it is locked away. Obviously he is not deemed to be responsible enough to deal with it himself. They are still giving him three doses, but tailoring it to the readings - at last. I gave him 2 Mars bars yesterday, so when they check his blood at dinner time, the reading will be sky high. He said he had ordered soup and a roll again, so not too much carbohydrates going in. They would prefer him to eat a "proper" meal, but after having a meal at lunch time, he does not feel hungry.

Right, I think we are all up to date now. He is certainly looking and sounding as though he is on the mend. But time will tell. I still tell him every day that he is not coming home until he can stand and walk properly, albeit with the frame. I have told him that if one of the doctors tells him he can go home, to say that they must speak to me. I will then ask them that if they are discharging him, to where? I think this will come quite soon once they stop treating him with caution because of the infection. He is hoping that by the weekend he will be strong enough to get to the TV room(it is only next door) because he wants to watch the F1. Might be difficult because all this week and last, there is a chap in there who has the tennis on. On the weekend, this clashes with F1. We'll have to see at the time. It comes on a bit earlier that when I get there, so I might try and be there earlier to see if I can possibly help to oust the tennis buff!

Maisie
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Old 11th July 2019, 18:26   #263 (permalink)
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Re: My Bolshie Husband

Now we have another problem. Today, Dave's face has blown up like a balloon! He can hardly talk and has been on nil by mouth since 7.00am. Nothing to eat or drink. Yesterday he was still complaining of a dry mouth, but they gave him a tube of gel for this.

I said that I didn't like the look of his face and also his lips are peeling. I got a torch and looked in his mouth. I have never seen anything like it. All surfaces in his mouth, including both sides of his tongue, are covered in a white fungus that looks like a cauliflower head. I went out to the desk to ask for a doctor to come and look at him. They wrote down what I was saying and promised to put this to a doctor.

Two hours and twenty minutes later a doctor appeared. I told her about Dave's mouth. She got a torch and looked. She agreed it is a fungal infection caused, she reckons, by the steroids Dave is taking and his "out of control sugar levels"! Am I fuming? I wanted to know why he had been kept all day with no food or drink and she said that Dave is booked for a sigmoidoscopy, but that she didn't know why he was NBM. She went out. When she came back she said that he was booked for almost the last patient of the day because of the C.Diff. She said she would prescribe some drops for his mouth.

Dave hadn't noticed that he was NBM because his mouth and throat are so painful he couldn't eat anyway. However, as I pointed out to the doctor, being so long without food or drink is going to play havoc with his sugar levels. She said nothing. It is a shame that Dave is feeling so grotty that he couldn't even bother about complaining. The infection was making it difficult for him to talk as well, as he cannot swallow.

The doctor was at the desk writing in Dave's notes folder when I left. I asked if he could be given some of the Ensure drinks after the sigmoidoscopy and she said she would arrange it. She told me the drops would be put in his mouth, swilled round and gargled with if possible, and then spat out. I can see difficulties here as he is flat out in bed. She went on to say that if this does not improve his mouth in "4 or 5 days", then they will have to think about something else. Reading about this, it seems antibiotics can cause this. He has been getting oodles of this pumped into him through the cannulas. The doctor never mentioned this probable cause. However, if I see her tomorrow I might throw that one at her. They give him so many bags of Metronidazole without explaining why. Of course I would imagine they are trying to treat the C.Diff. as this is a recognised antibiotic for it.

So he also missed out today on having a little walk around the room. He said that this morning they had to strip the bed and him because of what happened overnight. So a trip to the toilet is out. At some point this morning he asked a nurse he had not seen before if she could get him a bedpan. She asked him what that was! I kid you not!

So we have physicians who are causing problems with their treatment and don't tell you and staff who do not know what equipment is for. He had to explain to her what it was. Off she went and came back with one and asked "is this it?". The mind boggles. He is forever telling me that half of them there don't know what they are doing and I am starting to think he is right.

Shame as I had taken the fruit in to him but he couldn't touch it. I am going to have a fruit-in tonight! I'll have to try again tomorrow with some of it.

I am going to watch the tennis now.

Maisie
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Old 11th July 2019, 20:22   #264 (permalink)
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Re: My Bolshie Husband

My father always got oral thrush if he took antibiotics for more than 7 days. What you've described is exactly what his mouth looked like. If he has oral thrush everything tastes very bitter so he won't want to eat as everything tastes rotten. I made things like stewed apples and custard and laced it with sweetner to the point where it was absolutely and totally inedible for us but it became palitable for him. I made soup and laced it with sweetener (sounds gross) but he could eat it. We worked out that if he had to chew something then move it round his mouth made it impossible to swallow as it tasted so bitter.

Maybe Dave in his confusion didn't ask for a bedpan so she didn't know what he wanted until he explained what it was for.
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Old 12th July 2019, 07:18   #265 (permalink)
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Re: My Bolshie Husband

A nurse no knowing what a bedpan is ? ..... VERY worrying !! It would appear Maisie, that your hospital is not at all good. Ours in Worthing is rated outstanding, do you know what yours is rated ?
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Old 12th July 2019, 08:18   #266 (permalink)
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Re: My Bolshie Husband

Well, in April 2018 it was rated by the Chief Inspector of Hospitals as "Requires Improvement". Personally, I would say it is now below that rating. In August 2016 it was rated as "Requires Improvement", so it is a bit grim that no improvement was shown in a two year period.

I mentally owe the doctor an apology. I have just asked the question on Google and it seems high blood sugar levels can cause oral thrush. So together with the large amounts of antibiotics, he didn't stand much of a chance. But she would have to beat an apology out of me!

I am having terrible trouble now with my back. The place where I felt it "pop" when lifting Dave, is now clear of pain. However, the pain is now in both my hips, just where you would put your hands on your hips. I have a slight cough and when I cough it nearly splits me in half! I had trouble getting out of bed this morning too. I am taking large doses of co-codamol, but it doesn't seem to touch the pain. Really I could do without all the walking involved in visiting Dave, but I couldn't do that to him. Poor sod is so depressed as it is. He always says at some point when I am there, that he wishes I could be there with him all the time.

Kalkan: did the thrush get treated for your father? How long before it went? I must admit, I have never seen anything like it. When I went to the desk to ask for a doctor, the nurse writing it down said "ah! Thrush". I hadn't thought about a name, all I knew was that it looked bloody awful. It was causing the right side of his mouth to sort of droop when he spoke. I had noticed that the day before, but he said he felt alright. This horrible stuff just came up over night. I read that you can remove the white patches, but it leaves a red patch on the membrane which sometimes bleeds. The pictures I found on Google do not even approach the amount of stuff that he has in his mouth. The pictures just showed it in a few places, not all over.

Hopefully when I get there this afternoon there will be a slight improvement. Also I want to know what, if anything, the sigmoidoscopy showed. The doctor mumbled something about colitis, so I suppose they think that he still has this. I think it is this colitis which has produced the amounts of antibiotics they have given him.

Talk about two steps forward and three steps back! It seems that the longer he is there, the worse he gets. I suppose they will be telling me shortly that he can be discharged. No way Jose! I am, in a strange sort of way, looking forward to telling them that I will not have him home, and that they had better think of something else!

Maisie
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Old 12th July 2019, 10:38   #267 (permalink)
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Re: My Bolshie Husband

They gave my dad tablets to suck which helped the symptoms but I don't think there's much treatment and it cleared when the anitbiotics got out of his system. It was when he wasnt eating and sying everything tasted bitter that i hit on giving him very highly sweetened food that could just go in his mouth and be swallowed as chewing made everything taste disgusting to him.
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Old 12th July 2019, 13:21   #268 (permalink)
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Re: My Bolshie Husband

Maisie get yourself to see a specialist for your back. I know that this is not as esy in UK as it is in Turkey, but please get the ball rolling before you are totally incapacitated.
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Old 13th July 2019, 09:16   #269 (permalink)
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Re: My Bolshie Husband

I have a GP appointment on Tuesday, not for my back, although I will obviously get him to examine me and recommend something. X-ray? Well, if this is indicated I can get this done when I visit Dave.

They have prescribed Nystan drops for the thrush. When I got to the hospital yesterday, Dave was just finishing his "lunch". A yoghurt and a trifle. He said that as he had trouble swallowing, he did not think he could eat a proper meal. After, we gave the Nystan a go. A few drops in the mouth, swill it round and spit out. It did seem to work. Although supposed to leave it in the mouth for 20 minutes, he said he could feel so many "bits" that he had to have some water to wash it out. Loads of the stuff had become dislodged, so was better out than in. We did the exercise a few times. His mouth is looking so much better now. He ate a plastic container full of mixed soft fruit. He ate it all, but said that it would probably work wonders for his bowel problems! He says that he feels really ill at the moment - all he wants to do is sleep. As he hasn't been able to swallow properly he has not had a lot of the pills for two days now. This could be contributing. They are giving him, where they can, liquid forms of the meds, but there are a lot that do not come in this form. If the "cure" has continued to work in his mouth, he might be able now to take some of the pills.

He had the sigmoidoscopy but hasn't been given any results. Typical! I couldn't find anyone there who could tell me, so I will try again today.

He has missed two days now of walking with the frame. So he is not getting the small exercise for his legs that he needs. Perhaps today he might be able. But it depends on how they view the C.Diff. His door was kept shut yesterday, so obviously they think it is still there. I have just been reading about this. It can cause a lot of the symptoms Dave complains of. Loss of appetite, sickness, stomach pain, general listlessness, sleeplessness, plus many other things. A bit of a general all rounder to decrease the chances of feeling better. I read that it can take 14 days or so before the infection is on the wane. So definitely not helping. Why this was not picked up when this first started last August, I don't know. It seems that they have only just decided to do the tests on the poo that they should have done a long time ago. In the meantime, I consider that his loss of muscle and general overall weight loss is because he was kept in bed for so long. Dehydration played a big part in this also. His legs do seem a little bit fatter, although still painfully thin. Maybe as he is eating better now (until this bloody thrush) this is helping. It just seems like as he starts to feel better something else comes along and he is "down" again. It is difficult to see him like this and to know what to have conversations about. I have been telling him about the tennis, but that doesn't take long!

Yesterday I went in early as I had to post a parcel first, and the bus came along at the right time. After he finished his trifle, they came in and hooked him up to two drips again. One with the antibiotics and one which is potassium. Reading about the symptoms of low potassium explain why they are giving Dave this. He felt very tired and said that I should go home as he wanted to sleep.

So I managed to see most of the Djokovich semi-final and all of Federer versus Nadal. Not exactly a subject that will entail a very long conversation, but it is something.

He asks every day if there was anything "interesting" in the post. The only item of mail of any importance was a letter for Dave giving him an appointment with the "Diabetes Educator" (!) at a clinic which is too far for us to travel to even if Dave could walk! I telephoned and cancelled it. Quite what an "Educator" can tell us about diabetes that we don't already know is beyond me. The nurse that Dave used to see at our practice had only just started to be the Diabetic Nurse. She said Dave was a good subject for her as he didn't fit the mould and the text book descriptions and never had done. I know for a fact that she has moved to one of these clinics. So maybe she is now an "Educator". Who knows? There is a clinic nearer to us, but the letter said that it would be a long wait if we "selected" a clinic. Well, for the time being they can stuff their appointment!

Maisie
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Old 13th July 2019, 09:41   #270 (permalink)
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Re: My Bolshie Husband

If all these professional 'experts'* know about these opportunistic infections like c.diff, thrush and UTIs why dont they also understand that prevention is better than cure?
Some basic hygiene review perhaps?

* definition of an expert: an ex is a has been and a 'spert' is a drip under pressure.
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